Inherited cholesterol facts
  • People with familial hypercholesterolemia (FH) are at greater risk of heart disease
  • 1 in 250 people in the UK are believed to have FH 
  • Over 260,000 people in the UK may have FH, with fewer than 10% diagnosed
  • 56,000 children in the UK may have FH but only 600 of these are known
Heart of the Family - combined

Watch this film to hear GP, Dr Sarah Jarvis, and patients, talk about inherited high cholesterol

Familial Hypercholesterolemia (FH) Awareness & Support

HEART UK is dedicated to preventing premature deaths caused by Familial Hypercholesterolaemia (FH) by raising awareness of this condition and providing help and advice to anyone affected by it. 

If you or a family member has been diagnosed with FH, we provide a range of support to help you understand the condition and the treatments that are available. We have developed resources specifically for children living with FH in the family.

Helpful Booklets

Written by our expert team at HEART UK, the following two booklets provides a step-by-step explanation of what Familial Hypercholesterolemia is, how it is diagnosed, treatment and tips for everyday living. Click the links below to open up a PDF file of the booklets which you can download and print.

You can also order a copy of either booklet from HEART UK by calling our Cholesterol Helpline on 0345 450 5988, by emailing us, or by writing to HEART UK, 7 North Road, Maidenhead, SL6 1PE – mark your envelope FH Booklets.

Resources for Children

For children and families where FH is present, HEART UK has produced resources aimed at children and families, including:

A Story of Hope - a short four-minute film about a family with a history of FH.

Buddy’s FH Adventure - an e-book for children aged 7+.

European FH Patient Network

HEART UK is part of European FH Patient Network  Established in March 2015, the network actively works to secure as early as possible identification and diagnosis of FH patients to prevent early cardiovascular disease. Discover more  about the European FH Patient Network here.

Cholesterol Helpline

Our friendly Cholesterol Helpline dietitians and cardiac nurses provide free, impartial, friendly and informative advice on FH, find our how to contact our helpline here.

We also offer a comprehensive Frequently Asked Questions section about Familial Hypercholesterolemia on our website here.

Campaigning & Awareness

HEART UK campaigns to improve awareness of Familial Hypercholesterolaemia​, increasing early diagnosis and improving the care and treatment of people living with FH. Our Heart of the Family campaign is focused on raising awareness of Familial Hypercholesterolaemia (FH). We want to raise awareness of Familial Hypercholesterolemia​ and increase screening and testing for FH. This is so important as early diagnosis and treatment can help save lives and break family cycles of premature heart disease and death.  Read more about our Heart of the Family campaign here.

Our Heart of the Family campaign is just one example of the work HEART UK undertakes, you can discover more about HEART UKs FH campaigning and awareness work here.