Heart of the Family

Heart of the Family is a new campaign to raise awareness of Familial Hypercholesterolaemia (FH), a genetic condition that causes higher than normal cholesterol levels from birth, affecting approximately one in 500 people in the UK. Due to life-long high cholesterol levels, people with untreated FH are at risk of developing heart disease at an early age, including heart attacks.

The campaign has been developed and funded by Sanofi UK and supported by HEART UK – The Cholesterol Charity.

Through Heart of the Family we want to increase awareness of, and screening and testing for Familial Hypercholesterolemia​ as early diagnosis and treatment can help save lives and break family cycles of premature heart disease and death.

Please take some time to view the videos below. There are six in total, the first a film summarising all of the stories, four featuring inspirational people living with FH and in the final film Dr Sarah Jarvis explains FH in more detail.


Heart of the Family - Combined Film

Watch this film to hear GP, Dr Sarah Jarvis, and patients, talk about inherited genetic high cholesterol, also known as Familial Hypercholesterolaemia or FH. Hear from four people about the signs and symptoms of FH, their diagnosis stories, what it’s like living with FH and managing the disease and why early diagnosis is so important for all members of the family – young and old.

 

Bryan's Story

Bryan Dobson was diagnosed with Familial Hypercholesterolaemia (FH) in his forties after a work colleague spotted little white spots underneath his eyes, which can sometimes be a sign of FH. Hear from him and his family on adapting to life post diagnosis and why cholesterol testing is so important.

 


Hazel's Story

Find out why Hazel Gallagher set up the cholesterol charity HEART UK and how she has lived with Familial Hypercholesterolaemia (FH) for the last 30 years. Her sons and grandchildren also have FH and Hazel is passionate about the benefits of keeping fit and healthy – she is an inspiration to her family and others with FH.

 

Kate's Story

Meet Kate Kear. Two of her four children have been diagnosed with Familial Hypercholesterolaemia (FH). Hear from Kate about her struggle to get her family tested and why it was worth it.

 


David's Story

David Collings was diagnosed with Familial Hypercholesterolaemia (FH) after a heart attack. Since his diagnosis, six members of his family have also been found to have the faulty gene, including his daughter Bethan.

 


Dr Sarah Jarvis

GP, Dr Sarah Jarvis discusses the signs and symptoms of Familial Hypercholesterolaemia (FH) as well as prevalence and management. Understand why diagnosis and treatment are so important in helping reduce the possibility of early heart disease, including heart attacks, amongst those with this inherited condition.

 

You can find out more information about Familial Hypercholesterolaemia and contact our Cholesterol Helpline if you have any concerns or would like further information. 

Inherited cholesterol facts
  • People with familial hypercholesterolemia (FH) are at greater rish of heart disease
  • At least 1 in 500 people are believed to have FH but may be more as in other European countries
  • Of the 120,000 people in the UK with FH only 15% – less than 1 in 5, know they have the condition
  • At least 28,000 children in the UK have FH but only 600 of these are known
Familial Hypercholesterolaemia Sanofi Booklet
Inherited Cholesterol Guide

Download our easy to read pictorial guide to Familial Hypercholesterolemia. Find out more about inherited high cholesterol.