HEART UK Lipoprotein Apheresis Toolkit

A toolkit designed to inform clinicians, patients and commissioners about lipoprotein apheresis treatment in the UK.

Executive Summary

Acknowledgements

Contents of the Toolkit

Section 1: Introduction

1.0: Introduction

1.1: HEART UK lipid clinic/apheresis site map

1.2: Lipoprotein apheresis for refractory hyperlipidaemia: clinical indications and service requirements

Section 2: Setting up and protocols for a lipoprotein apheresis service

2.0: Setting up and protocols for a lipoprotein apheresis service

2.1: Clinical Nurse Specialist in Apheresis Band 6 AFC job description

2.2: Clinical Nurse Specialist in Apheresis Band 7 AFC job description

2.3: LDL apheresis competency assessment form

2.4.1: Apheresis costing sheet example 1

2.4.2: Apheresis costing sheet example 2

2.5: Royal Brompton and Harefield NHS Foundation Trust Harefield Hospital LDL Apheresis Unit Protocol

2.6: Sample annual letter to apheresis patient’s GP

2.7: Protocol Cardiff

2.7.1: Patient Group Direction (PGD) for the Clinical Nurse Specialist in Apheresis (Harefield)

2.7.2: Training for the Clinical Nurse Specialist regarding use of PGD (Harefield)

2.7.3: Viva questions for Apheresis PGD (Harefield)

2.8: Sample apheresis registry consent form

Section 3: Patient information and referral

3.0: Patient information and referral

3.1: Information about lipoprotein apheresis (Harefield Hospital)

3.2: Patient information from the Lipid Unit at University Hospital Llandough

3.3: Referral pathway for lipoprotein apheresis

3.4: Six month review letter to GP

Section 4: Commissioning and the case for lipoprotein apheresis

4.0: Commissioning and the case for lipoprotein apheresis

4.1: Letter to support referred patient

4.2: Case studies

4.3: Patient evaluation of the Lipoprotein Apheresis Unit at Llandough Hospital

Download the full Apheresis Toolkit

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